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Transitional Care for Patients with Congenital Colorectal Diseases: An EUPSA Network Office, ERNICA, and eUROGEN Joint Venture.

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issue: Journal of pediatric surgery [J Pediatr Surg] 2023 Dec; Vol. 58 (12), pp. 2319-2326. Date of Electronic Publication: 2023 Jun 14.
Author: de Beaufort CMC; Emma Children's Hospital Amsterdam UMC, Location University of Amsterdam, Department of Pediatric Surgery, Meibergdreef 9, Amsterdam, the Netherlands; Amsterdam UMC, University of Amsterdam, Gastroenterology and Hepatology, Amsterdam Gastroenterology Endocrinology Metabolism, Meibergdreef 9, Amsterdam, the Netherlands; Amsterdam UMC, University of Amsterdam, Amsterdam Reproduction and Development Research Institute, Meibergdreef 9, Amsterdam, the Netherlands. Electronic address: c.m.debeaufort@amsterdamumc.nl.
Aminoff D; Italian Patient's Organization for ARM (AIMAR) - Patient Organization, Via Nomentana, Rome, Italy.
de Blaauw I; Department of Surgery - Division of Pediatric Surgery, Radboudumc Amalia Children's Hospital, Nijmegen, the Netherlands.
Crétolle C; Necker-Enfants Malades University Hospital, Paris, France.
Dingemann J; Department of Pediatric Surgery, Hannover Medical School, Hannover, Germany.
Durkin N; Stem Cell and Regenerative Medicine, DBC and BRC NIHR, Great Ormond Street Institute of Child Health, University College London, London, United Kingdom.
Feitz WFJ; Department of Urology, Division of Pediatric Urology, Radboudumc Amalia Children's Hospital, Nijmegen, the Netherlands.
Fruithof J; EAT - Esophageal Atresia Global Support Groups, Stuttgart, Germany; VOKS - Vereniging voor Ouderen en Kinderen met een Slokdarmafsluiting, Hellendoorn, the Netherlands.
Grano C; Department of Psychology, Faculty of Medicine and Psychology, University of Rome Sapienza, Rome, Lazio, Italy.
Burgos CM; Department of Pediatric Surgery, Karolinska University Hospital, Stockholm, Sweden.
Schwarzer N; SoMA, The German Patient Support Organization for Anorectal Malformations and Hirschsprung Disease, Munich, Germany.
Slater G; EAT - Esophageal Atresia Global Support Groups, Stuttgart, Germany; Lead ePAG (Patient Representative), ERN ERNICA.
Soyer T; Department of Pediatric Surgery, Hacettepe University, Ankara, Turkey.
Violani C; Sapienza University of Rome, Rome, Italy.
Wijnen R; Department of Pediatric Surgery, Erasmus MC Sophia Children's Hospital, Rotterdam, the Netherlands.
de Coppi P; Stem Cell and Regenerative Medicine, DBC and BRC NIHR, Great Ormond Street Institute of Child Health, University College London, London, United Kingdom.
Gorter RR; Emma Children's Hospital Amsterdam UMC, Location University of Amsterdam, Department of Pediatric Surgery, Meibergdreef 9, Amsterdam, the Netherlands.
DB Label: Database : MEDLINE

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Patient-driven healthcare recommendations for adults with esophageal atresia and their families.

학술저널

issue: Journal of pediatric surgery [J Pediatr Surg] 2021 Nov; Vol. 56 (11), pp. 1932-1939. Date of Electronic Publication: 2021 Jan 07.
Author: Ten Kate CA; Department of Pediatric Surgery and Pediatric Intensive Care Unit, Erasmus University Medical Centre - Sophia Children's Hospital, P.O. Box 2040, 3000 CA Rotterdam, Netherlands.
Rietman AB; Department of Pediatric Surgery and Pediatric Intensive Care Unit, Erasmus University Medical Centre - Sophia Children's Hospital, P.O. Box 2040, 3000 CA Rotterdam, Netherlands; Department of Child and Adolescent Psychiatry/Psychology, Erasmus University Medical Centre - Sophia Children's Hospital, P.O. Box 2040, 3000 CA Rotterdam, Netherlands.
Kamphuis LS; Department of Pulmonology, Erasmus University Medical Centre, P.O. Box 2040, 3000 CA Rotterdam, Netherlands.
Gischler S; Department of Pediatric Surgery and Pediatric Intensive Care Unit, Erasmus University Medical Centre - Sophia Children's Hospital, P.O. Box 2040, 3000 CA Rotterdam, Netherlands.
Lee D; Department of Pediatric Surgery and Pediatric Intensive Care Unit, Erasmus University Medical Centre - Sophia Children's Hospital, P.O. Box 2040, 3000 CA Rotterdam, Netherlands.
Fruithof J; Esophageal Atresia and Tracheoesophageal Fistula Support Federation & VOKS, Netherlands.
Wijnen RMH; Department of Pediatric Surgery and Pediatric Intensive Care Unit, Erasmus University Medical Centre - Sophia Children's Hospital, P.O. Box 2040, 3000 CA Rotterdam, Netherlands.
Spaander MCM; Department of Hepatology and Gastroenterology, Erasmus University Medical Centre, P.O. Box 2040, 3000 CA Rotterdam, Netherlands. Electronic address: v.spaander@erasmusmc.nl.
DB Label: Database : MEDLINE

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ERNICA Consensus Conference on the Management of Patients with Long-Gap Esophageal Atresia: Perioperative, Surgical, and Long-Term Management.

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issue: European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie [Eur J Pediatr Surg] 2021 Jun; Vol. 31 (3), pp. 214-225. Date of Electronic Publication: 2020 Jul 15.
Author: Dingemann C; Department of Pediatric Surgery, Hannover Medical School, Hannover, Germany.
Eaton S; NIHR Biomedical Research Centre at UCLH, Developmental Biology and Cancer Programme, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.
Aksnes G; Department of Pediatric Surgery, Oslo University Hospital, Oslo, Norway.
Bagolan P; Department of Medical and Surgical Neonatology, Research Institute, Bambino Gesù Children's Hospital, Rome, Italy.
Cross KM; Department of Neonatal and Paediatric Surgery, Great Ormond Street Hospital for Children, London, United Kingdom.
De Coppi P; NIHR Biomedical Research Centre at UCLH, Developmental Biology and Cancer Programme, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.; Department of Neonatal and Paediatric Surgery, Great Ormond Street Hospital for Children, London, United Kingdom.
Fruithof J; Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation and VOKS, Lichtenvoorde, The Netherlands.
Gamba P; Department of Pediatric Surgery, University of Padua, Padua, Italy.
Goldschmidt I; Department of Pediatric Gastroenterology and Hepatology, Hannover Medical School, Hannover, Germany.
Gottrand F; Department of Pediatric Gastroenterology, Hepatology and Nutrition, Reference Center for Rare Esophageal Diseases, CHU Lille, University of Lille, Lille, France.
Pirr S; Department of Pediatric Pulmonology, Allergology and Neonatology, Hannover Medical School, Hannover, Germany.
Rasmussen L; Department of Pediatric Surgery, Odense University Hospital, Odense, Denmark.
Sfeir R; Department of Pediatric Surgery, Reference Center for Rare Esophageal Diseases, CHU Lille, University of Lille, Lille, France.
Slater G; Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation and TOFS, Nottingham, United Kingdom.
Suominen J; Department of Pediatric Surgery, University of Helsinki, Helsinki, Finland.
Svensson JF; Department of Pediatric Surgery, Karolinska University Hospital, Stockholm, Sweden.
Thorup JM; Department of Pediatric Surgery, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.
Tytgat SHAJ; Department of Pediatric Surgery, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, The Netherlands.
van der Zee DC; Department of Pediatric Surgery, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, The Netherlands.
Wessel L; Department of Pediatirc Surgery, University Medical Center Mannheim, Medical Faculty Mannheim, University of Heidelberg, Mannheim, Germany.
Widenmann-Grolig A; Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation and KEKS, Stuttgart, Germany.
Wijnen R; Department of Pediatric Surgery, Erasmus MC, Rotterdam, The Netherlands.
Zetterquist W; Department of Woman and Child Health, Karolinska University Hospital, Stockholm, Sweden.
Ure BM; Department of Pediatric Surgery, Hannover Medical School, Hannover, Germany.
DB Label: Database : MEDLINE

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ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Follow-up and Framework.

학술저널

issue: European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie [Eur J Pediatr Surg] 2020 Dec; Vol. 30 (6), pp. 475-482. Date of Electronic Publication: 2019 Nov 27.
Author: Dingemann C; Department of Pediatric Surgery, Hannover Medical School, Hannover, Germany.
Eaton S; Department of Paediatric Surgery & Metabolic Biochemistry, UCL Great Ormond Street Institute of Child Health, University College London Institute of Child Health, London, United Kingdom.
Aksnes G; Department of Pediatric Surgery, Oslo University Hospital, Oslo, Norway.
Bagolan P; Department of Medical and Surgical Neonatology, Bambino Gesù Children's Hospital-Research Institute, Rome, Italy.
Cross KM; Specialist Neonatal and Paediatric Surgery, Great Ormond Street Hospital for Children, London, United Kingdom.
De Coppi P; Specialist Neonatal and Paediatric Surgery, Great Ormond Street Hospital for Children, London, United Kingdom.; Department of Paediatric Surgery & Metabolic Biochemistry, UCL Great Ormond Street Institute of Child Health Library, London, United Kingdom.
Fruithof J; Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation & - VOKS, Lichtenvoorde, The Netherlands.
Gamba P; Department of Pediatric Surgery, University of Padua, Padua, Italy.
Husby S; Department of Pediatric Gastroenterology, Hans Christian Andersen Children's Hospital, Odense University Hospital, Odense, Denmark.
Koivusalo A; Department of Pediatric Surgery, University of Helsinki, Helsinki, Finland.
Rasmussen L; Department of Pediatric Surgery, Odense University Hospital, Odense, Denmark.
Sfeir R; Department of Pediatric Surgery CRACMO, Centre Hospitalier Régional Universitaire de Lille, Lille, France.
Slater G; Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation & - TOFS, Nottingham, United Kingdom.
Svensson JF; Department of Pediatric Surgery, Karolinska University Hospital, Stockholm, Sweden.
Van der Zee DC; Department of Pediatric Surgery, University Medical Center Utrecht, Utrecht, The Netherlands.
Wessel LM; Department of Pediatric Surgery, University of Mannheim, Medical Faculty of Heidelberg, Mannheim, Germany.
Widenmann-Grolig A; Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation & - KEKS, Stuttgart, Germany.
Wijnen R; Department of Pediatric Surgery, Erasmus MC Rotterdam, Rotterdam, The Netherlands.
Ure BM; Department of Pediatric Surgery, Hannover Medical School, Hannover, Germany.
DB Label: Database : MEDLINE

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ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Diagnostics, Preoperative, Operative, and Postoperative Management.

학술저널

issue: European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie [Eur J Pediatr Surg] 2020 Aug; Vol. 30 (4), pp. 326-336. Date of Electronic Publication: 2019 Jul 02.
Author: Dingemann C; Department of Pediatric Surgery, Hannover Medical School, Hannover, Lower Saxony, Germany.
Eaton S; Department of Paediatric Surgery and Metabolic Biochemistry, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.
Aksnes G; Department of Pediatric Surgery, Oslo University Hospital, Oslo, Norway.
Bagolan P; Department of Medical and Surgical Neonatology, Bambino Gesu Children's Research Hospital, Rome, Italy.
Cross KM; Department of Specialist Neonatal and Paediatric Surgery, Great Ormond Street Hospital for Children, London, United Kingdom.
De Coppi P; Department of Paediatric Surgery and Metabolic Biochemistry, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.; Department of Specialist Neonatal and Paediatric Surgery, Great Ormond Street Hospital for Children, London, United Kingdom.
Fruithof J; Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation and-VOKS, Lichtenvoorde, The Netherlands.
Gamba P; Department of Pediatric Surgery, University of Padua, Padua, Italy.
Husby S; Department of Pediatric Gastroenterology, Hans Christian Andersen Children's Hospital, Odense University Hospital, Odense, Denmark.
Koivusalo A; Department of Pediatric Surgery, University of Helsinki, Children's Hospital, Helsinki, Finland.
Rasmussen L; Department of Pediatric Surgery, Odense University hospital, Odense, Denmark.
Sfeir R; Department of Pediatric Surgery, Centre Hospitalier Régional Universitaire de Lille, Lille, France.
Slater G; Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation and-TOFS, Nottingham, United Kingdom.
Svensson JF; Department of Pediatric Surgery, Karolinska University Hospital, Stockholm, Sweden.
Van der Zee DC; Department of Pediatric Surgery, University Medical Center Utrecht, Utrecht, The Netherlands.
Wessel LM; Department of Pediatric Surgery, University of Mannheim, Medical Faculty of Heidelberg, Mannheim, Germany.
Widenmann-Grolig A; Esophageal Atresia and Tracheo-Esophageal Fistula Support Federation and KEKS, Stuttgart, Germany.
Wijnen R; Department of Pediatric Surgery, Erasmus MC Sophia Ringgold standard institution, Rotterdam, The Netherlands.
Ure BM; Department of Pediatric Surgery, Hannover Medical School, Hannover, Lower Saxony, Germany.
DB Label: Database : MEDLINE

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A patient led, international study of long term outcomes of esophageal atresia: EAT 1.

학술저널

issue: Journal of pediatric surgery [J Pediatr Surg] 2018 Apr; Vol. 53 (4), pp. 610-615. Date of Electronic Publication: 2017 Jun 09.
Author: Svoboda E; The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups, Sommerrainstrasse 61, 70374 Stuttgart, Germany.
Fruithof J; The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups, Sommerrainstrasse 61, 70374 Stuttgart, Germany.
Widenmann-Grolig A; The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups, Sommerrainstrasse 61, 70374 Stuttgart, Germany.
Slater G; The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups, Sommerrainstrasse 61, 70374 Stuttgart, Germany.
Armand F; The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups, Sommerrainstrasse 61, 70374 Stuttgart, Germany.
Warner B; The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups, Sommerrainstrasse 61, 70374 Stuttgart, Germany.
Eaton S; UCL Great Ormond Street Institute of Child Health, 30 Guilford St, London WC1N 1EH, UK.
De Coppi P; UCL Great Ormond Street Institute of Child Health, 30 Guilford St, London WC1N 1EH, UK.
Hannon E; UCL Great Ormond Street Institute of Child Health, 30 Guilford St, London WC1N 1EH, UK. Electronic address: edward.hannon@ucl.ac.uk.
DB Label: Database : MEDLINE

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